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IRD clinical trials – ongoing research

Although there aren’t currently treatments available for many forms of IRD, there is a lot of research happening to try and find new options to treat these diseases. Most clinical trials are run at specialist centres and only include patients who have a particular diagnosis or specific genetic mutation and some only run in specific countries. Most clinical trials across all different types of diseases are registered on the clinicaltrials.gov website.

If you think your loved one might be a candidate for a clinical trial, you should talk to their doctor about the possibility and what their options might be. You can find a list of trials that are currently recruiting patients for treatments of inherited retinal dystrophy here

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I’m a person with suspected inherited visual impairment

I’m a friend or family member of someone with suspected inherited visual impairment

I’m a healthcare professional

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Information on this site is for a global audience and will not include information related
to specific referral centres. This is intended for local countries to add.
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